Communicating evidence for shared-decision making is challenging. This process can be facilitated by the use of Decision Aids (DA), but their production is time consuming, often not based on the best available evidence or rapidly outdated. Linking the production of DA to current high-quality GRADE guidelines offers unique opportunities to overcome these limitations.
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The SHARE IT project (SHARing Evidence to Inform Treatment decisions) seeks to:
Our framework for the development of generic DA builds on the International Patient Decision Aid Standards and on the methodology developed within the DECIDE collaboration (Developing and Evaluating Communication Strategies to Support Informed Decisions and Practice Based on Evidence).
Using an iterative process of brainstorming, stakeholder feedback, and user-testing in real clinician-patient encounters, we are developing and refining a prototype of an electronic guideline authoring tool that allows automated production of DA, linked to treatment recommendations.
We design our DA to be used for the clinical encounter, between patients and clinicians, in contrast with DA meant to be used by patients alone, outside of the encounter. Our design is inspired by the work and model pioneered by Montori & colleagues.
Our DA prototype can display components of GRADE assessment of current evidence, including the list of patient important outcomes estimates of treatment effects, confidence in these estimates, burden of treatment, and cost . The prototype allows an interactive presentation of these elements, adapted to patients and clinicians needs, to promote a conversation about treatment alternatives in the clinical encounter.
Our generic DA linked to the guideline-authoring tool provide the opportunity to automatically produce and foster the uptake of DA for a wide range of diseases and thus enhance shared-decision making.
The SHARE IT study is currently at the phase of user-testing in real clinical encounters. For more information please contact firstname.lastname@example.org)